Living with Continuous Ambulatory Peritoneal Dialysis among Community-Dwelling Patients: A Qualitative Meta-synthesis
Keywords:
Continuous ambulatory peritoneal dialysis, living with chronic illness, community-dwelling patientsAbstract
This study aimed to synthesize and interpret in depth the lived experiences of community-dwelling patients undergoing Continuous Ambulatory Peritoneal Dialysis (CAPD). A qualitative meta-synthesis was conducted using the meta-ethnography approach proposed by Noblit and Hare. Eleven qualitative studies that met the inclusion criteria and passed quality appraisal were systematically analyzed through a process of cross-study translation.
The synthesis revealed that living with CAPD is not limited to technical self-care practices or adherence to medical regimens; rather, it represents a dynamic process of continual life reorganization under the conditions of long-term treatment. Four interrelated dimensions of shared meaning emerged: acceptance of treatment as a permanent life condition; intensive management of everyday life through the self-care role; self-care as an expression of dignity and personal identity; and the family as both a key support system and a space for negotiating roles and responsibilities.
References
World Health Organization. Global health estimates: Chronic kidney disease. Geneva: World Health Organization; 2023.
United States Renal Data System. USRDS annual data report: Epidemiology of kidney disease in the United States. Bethesda (MD): National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases; 2022.
Ministry of Public Health, Thailand. Thailand renal replacement therapy registry report. Bangkok: Bureau of Non-Communicable Diseases, Department of Disease Control; 2022.
Li PK, Chow KM. Peritoneal dialysis-first policy made successful: Perspectives and actions. Am J Kidney Dis. 2013;62(5):993–1005.
Brown EA, Blake PG, Boudville N, et al. International Society for Peritoneal Dialysis practice recommendations: Prescribing high-quality, goal-directed peritoneal dialysis. Perit Dial Int. 2020;40(3):244–253.
Walker RC, Howard K, Tong A, Palmer SC, Marshall MR, Morton RL. The economic considerations of patients and caregivers in choice of dialysis modality. Hemodial Int. 2016;20(4):634–642.
Griva K, Li ZH, Lai AY, Choong MC, Foo MW. Perspectives of patients, families, and health care professionals on decision-making in chronic kidney disease: A qualitative study. Am J Kidney Dis. 2018;71(6):811–822.
Tong A, Sainsbury P, Craig J. Support interventions for caregivers of people with chronic kidney disease: A systematic review. Nephrol Dial Transplant. 2008;23(12):3960–3965.
Morton RL, Tong A, Howard K, Snelling P, Webster AC. The views of patients and carers in treatment decision making for chronic kidney disease: Systematic review and thematic synthesis of qualitative studies. BMJ. 2010;340:c112.
Noblit GW, Hare RD. Meta-ethnography: Synthesizing qualitative studies. Newbury Park (CA): Sage Publications; 1988.
Tong A, Flemming K, McInnes E, Oliver S, Craig J. Enhancing transparency in reporting the synthesis of qualitative research (ENTREQ). BMC Med Res Methodol. 2012;12:181.
Critical Appraisal Skills Programme (CASP). CASP qualitative research checklist. Oxford: CASP; 2018.
Lewin S, Booth A, Glenton C, et al. Applying GRADE-CERQual to qualitative evidence synthesis findings. Implement Sci. 2018;13(Suppl 1):2.
Charmaz K. Loss of self: A fundamental form of suffering in the chronically ill. Sociol Health Illn. 1983;5(2):168–195.
Kralik D, Visentin K, van Loon A. Transition: A literature review. J Adv Nurs. 2006;55(3):320–329.
Paterson BL. The shifting perspectives model of chronic illness. J Nurs Scholarsh. 2001;33(1):21–26.
Lorig KR, Holman H. Self-management education: History, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1–7.
Nordenfelt L. The varieties of dignity. Health Care Anal. 2004;12(2):69–81.
White Y, Grenyer BF. The biopsychosocial impact of end-stage renal disease: The experience of dialysis patients and their partners. J Adv Nurs. 1999;30(6):1312–1320.
Tong A, Sainsbury P, Chadban S, Walker RG, Harris DC, Carter SM, et al. Patients’ experiences and perspectives of living with CKD. Am J Kidney Dis. 2009;53(4):689–700.
Greenhalgh T. The limits of biomedical models of illness. BMJ. 2015;350:h160.
Engel GL. The need for a new medical model: A challenge for biomedicine. Science. 1977;196(4286):129–136.

