HEALTH PROMOTION MODEL AMONG MOTHERS CARING FOR CHILDREN WITH THALASSEMIA MAJOR IN UDON THANI PROVINCE, THAILAND
Article Sidebar
Main Article Content
Abstract
Thalassemia is a genetic disorder of the red blood cells that also impacts the affected family, child and public health system. This study aims to develop a health promotion model for mothers caring for children with thalassemia major by using participatory action research to promote thalassemic health education. Fifteen mothers with thalassemic children from Udon Thani province, Northeastern Thailand, participated in focus groups. We analyzed the resulting qualitative data using reflexive and critical dialectic through a reiterative process and identified dominant themes. In response to the identified knowledge gaps of these participants, we trained mothers in the cause, transmission, treatment, and prognosis of thalassemia, as well as provide psychosocial support. Maternal scores for knowledge and attitudes increased significantly after 12 months of training, and depression indices decreased following 12 months of psychosocial support. The project activities empowered participants to create and share knowledge, which improved the well-being of mothers caring for children with thalassemia major. This model could be applied in other patient groups.
Article Details
References
Hirunchunha, S. (1998). Development of care model for the caregiver of stokes patients at home. Doctoral dissertation in Nursing, Faculty of Graduate Studies, Mahidol University. (in Thai)
สุดศิริ หิรัญชุณหะ. (2541). การพัฒนารูปแบบการดูแลสุขภาพที่บ้านของผู้ดูแลผู้ป่วยโรค หลอดเลือดสมอง. ดุษฎีนิพนธ์ปริญญาเอกสาขาพยาบาลศาสตร์, บัณฑิตวิทยาลัย มหาวิทยาลัยมหิดล.
Holden, E. W. et al. (1997). Controlling for general and disease-specific effects in child and family adjustment to chronic childhood illness. J Pediatr Psychol, 22: 13-27.
McTaggart, R. (1991). Principles of participatory action research. Adult Education Quarterly, 41(3), 168-187.
Meissen, G. J., & Warren, M. L. (1993). The self-help clearinghouse: A new development in action research for community psychology. Journal of Applied Behavioral Science, 29(4), 446-463.
Naidoo, J., & Willis, J. (1994). Health promotion foundation for practice. London: Bailliere Tindall.
Panich, V., Pornpatkul, M., & Sriroongrueng, W. (1992). The problem of thalassemia in Thailand. Southeast Asian Journal of Tropical Medicine & Public Health, 23(1), 1-6.
Prasomsuk, S., Jetsrisuparp, A., Ratanasisi, T., & Ratanasiri, A. (2007). Lived Experiences of Mothers Caring for Children With Thalassemia Major in Thailand. JSPN, 12(1), 13- 23.
Powell (Ed). Understanding the self-help organization: Frameworks and findings. California: Sage publication.
Renwick, R., Brown, I., & Nagler, M. (1996). Quality of life in health promotion and rehabilitation: Conceptual approaches, and application. Thousand Oaks, CA: Sage.
Rifkin, S. B. (1990). Community participation in maternal and child health/family planning programmes: an analysis based on case study materials. Geneva: World Health Organization.
Rockhill, V. A. (1992). Family background and Personality factors influencing Health related attitudes and behaviors toward medical treatment. Ph.D. Thesis, Faculty of Health Sciences, University of Rhode Island.
Sarafino, E. (1998). Health psychology: Bio- psychosocial interaction. 3rd ed. New York: John Wiley & Sons.
Subgranon, R., & Lund, D.A.(2002). Maintaining caregiving at home: A culturally sensitive grounded theory of providing care in Thailand. Journal of Transcultural. Nursing, 11(3), 166-173.
Tedsiri, C. (1994). Buddist and Psychological characteristics of parents as related to child care illness in Thalassemic children. Master’s thesis in Behaviral Science, Institute of Behavior science Research, Srinakarin Taravirot University. (in Thai)
ชุติมา เทศศิริ (2537). ลักษณะพุทธศาสนาและจิตลักษณ์ของบิดา มารดาที่เกี่ยวข้องกับพฤติกรรมการดูแลบุตรเจ็บป่วยเรื้อรังด้วยโรคธาลัสซีเมีย. วิทยานิพนธ์วิทยา ศาสตรมหาบัณฑิต มหาวิทยาลัยศรีนครินทรวิโรฒ.
Street, A. (1997). The Participatory Action Research Process for Clinical Nurses. Unpublished manuscript.
Wattana C. (1997). Model development for participatory caring relationship between nurses and patients to enhance self - care abilities in Kanghangmaew Hospital Amphoe Kanghangmaew Changwat Chantaburi. Master’s thesis in Nursing, Faculty of Graduate Studies, Mahidol University. (in Thai)
ชดช้อย วัตนะ (2540). การพัฒนารูปแบบการดูแลอย่างมีส่วนร่วมระหว่างพยาบาลและผู้รับบริการในการส่งเสริมการดูแลตนเอง โรงพยาบาลแก่งหางแมว จังหวัดจันทบุรี วิทยานิพนธ์พยาบาลศาสตรมหาบัณฑิต มหาวิทยาลัยมหิดล.
